Wednesday, June 24, 2015

In Pain but Grateful

Such an odd combination.

I have a been diagnosed with couple of ailments.  Hidradenitis suppurativa, Lyme disease & Costochondritis. They all suck individually, together they suck monkey balls.  The Hidradenitis causes boils and tunnels under your skin.  Lyme just attacks fucking everything and then Costochondritis makes you feel like you're having a heart attack.  Should probably add in the bulging discs in my neck as well as a recent discovery of a mild Chiari Malformation. 

Lovely, right?  

For the most part, I'm ok.  I can work & play and drive and be a single mom. I make dinner I clean the house (kids help) I garden, I spend time with my boyfriend, I do what needs to be done.  But every day there is either a headache or my ribs hurt or I'm walking funny because a new "alien" is trying to rear it's ugly self either in my bikini line (yeah like I'll ever wear a bikini) or under my arm and then it's goodbye tank tops. And every once in a while I just wake up exhausted and spend the day on the couch.  Thankfully I work from home and it's not an issue for work, but it is an issue for me.

I hide a lot.  Only if the pain is really bad do I say anything.  Otherwise it's pop a few ibuprofen and do what I need to do. I don't really have a choice. I have a life to live.

I really didn't start this post to whine, but more to just get it out.  It's my blog, right?  Some of the thoughts rattling around my skull about all of this focuses on my diet.  Why did I feel so great last summer to spend most of the fall and winter feeling miserable. 

Other than the addition of my amazing boyfriend, who did not cause any of this, the only other change was my diet.  I went back to eating carbs and sugar. 

Often I say I need to cut out the carbs to lose weight, but this isn't about losing weight.  This is about getting better.  I need to change my entire mindset.  I need to not give in, I need to be stronger in my resolve. 

So here is my game plan.  I need to treat carbs & sugar like I do mushrooms or wine.  I need to treat them like I'm allergic to them.  If you think about it, I am.  But instead of breaking out in hives or a rash, I break out in pain.  I'd like to stop causing myself pain.  

I rode my bike Monday for the first time since the fall. I did 2 miles. Last summer I was doing 14 to 15 miles a few times a week. I'd like to get back there. 

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